Sunday, November 20, 2011

Losing Another Good One

I am so angry and sad and upset and frustrated right now.

The world has lost a beautiful spirit all because her doctors were too stubborn to get her the help she truly needed and so vasculitis was allowed to take another person needlessly.

This one hits close to home for me because I count her among my friends. I am not giving her name here out of respect right now as I am not certain what her family would want. This girl, my friend, was only 25 and had been suffering from an unspecified form of vasculitis for 7 years. Her doctors didn't even know enough to tell her what type she had, let alone give her the treatments she really needed. They would not go to the Vasculitis Foundation for help and look at what happened.

My friend's vasculitis primarily effected her muscles and suddenly last night she was unable to breath. Her family took her to the hospital but they were unable to revive her.

This was a girl who had hopes and dreams, talents that the world will now not know. She was beautiful inside and out and will always be remembered. She used to like to write and always had a positive outlook, even when she was feeling down. This is what she had to say about herself

"Does anyone else hate these kinda questions?....ok here goes. Ever since I got vasculitis and lost many things in my life I always try to appreciate everything I have, especially my family and friends.
I love to laugh, and I think it's the best medicine so if u see me giggling for nothing don't be afraid I'm just thinking of something funny so i could be in good health lol.
I am extremely open minded so I never think anything is strange, it's just different and intriguing.
I don't get angry very easily, it's way too much work and I'm too lazy. Writing and reading are my life and with out it, I'd surely go out of existence.
I'm very sensitive, so I will shed tears for you and if u want to talk to someone I will always listen and advise if i can. I believe in walking in another person's shoes so I will always try to see both sides of an argument.
Basically i'm a kind and understanding person....phew there u go nice and boring. ARE YOU HAPPY NOW FACEBOOK?!" (Obviously taken from her facebook page).

This is why research is so important, my friend is only one face of the many people effected by vasculitis who die every year. Research can help stop the pain: The pain that patients feel as their bodies fail them and the pain that their families and friends feel when they see this pain, or when someone they love can no longer keep up their fight.

I will miss you so much my friend, I will never be able to tell you what I thought of Callalloo nor will we be able to talk about the new Being Human. I hope that where ever you are now, you have found peace and are no longer in pain.


  1. What a beautiful, touching, fitting tribute to an incredibly graceful young woman... She truly will be missed. We all have one more guardian angel now to look over us <3

  2. Thanks Kathryn. It's hard to believe that she's gone. I was just talking with her a bit the other day. <3

  3. I'm truly sorry Wit. What a god damn shame. She sounded like a truly wonderful person. The world is clearly a less good place without her in it. I'm so, so sorry.

  4. Thanks Justin, she was a great spirit and I think I am better off having known her.

  5. A wonderful tribute for her. She sounds like an amazing young woman. Her loss is going to be deeply felt all around. Even I feel a sense of loss for her and I am sure a lot of other people who did not know her personally will feel it too. Thank you for sharing her story.

  6. Thanks Jen. I know I will miss her, she was an inspiration to everyone.