I'm pretty frustrated with the state of medical science in relation to Vasculitis. There is a girl out there, fighting for her life right now in an ICU because her doctors did not know enough about the protocol for treating Vasculitis that they put her in a coma.
Imuran wasn't working so they switched her to methotrexate which she was only on for 6 weeks before they decided to take her off and give her Mercaptopurine. This form of chemo is not even approved for treatment of Vasculitis, unlike Rituxan which is the most obvious choice and the current go to drug for ANCA assoiciated Vasculitis.
Now, the big warning on Mercaptopurine is this
"Mercaptopurine is a potent drug. It should not be
used unless a diagnosis of acute lymphatic leukemia has been adequately
established and the responsible physician is experienced with the risks
of Mercaptopurine and knowledgeable in assessing response to
chemotherapy." (http://www.drugs.com/pro/mercaptopurine.html)
Because they didn't even apparently know about Rituxan I am pretty sure that her doctors were not knowledgeable about any form of chemotherapy.
This is why education and awareness is so important.
Showing posts with label emotional medicine. Show all posts
Showing posts with label emotional medicine. Show all posts
Monday, August 19, 2013
Monday, April 8, 2013
Letting Go
I know it's been a while since I last posted. Just know that for that time I didn't need to write down my thoughts. I just didn't have much to say. Health wise, the last year has been up and down but I've made it through to sit before you today and type some thoughts down for you to read.
This past almost year has led me to a conclusion. I really want to let go of the person I used to be because all that is doing is causing me grief emotionally and physically. I need to realize that I can't be the things I used to be and my life needs to change if I am ever going to get to a stable place.
But that stubborn girl just keeps clinging to me, haunting me like a ghost that needs to be laid to rest. Laying her to rest is just what I plan to do. I want to make a poppet of the girl I used to be and put her to rest; this way, the new me can rise from the ashes and reach her full potential. I know that I will still have some vestiges from my past self, because my new self will have been born from her, but maybe, just maybe, it will help me let go.
This past almost year has led me to a conclusion. I really want to let go of the person I used to be because all that is doing is causing me grief emotionally and physically. I need to realize that I can't be the things I used to be and my life needs to change if I am ever going to get to a stable place.
But that stubborn girl just keeps clinging to me, haunting me like a ghost that needs to be laid to rest. Laying her to rest is just what I plan to do. I want to make a poppet of the girl I used to be and put her to rest; this way, the new me can rise from the ashes and reach her full potential. I know that I will still have some vestiges from my past self, because my new self will have been born from her, but maybe, just maybe, it will help me let go.
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